People would ask first and be prepared to receive a yes, no, or maybe. In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. I want to transform this world so that it is not run by a death cult that wants to murder the land and most of us. What if this was a rite of passage, a form of emotional labor folks knew ofthis space of helping people transition? In contrast to highly psychiatric/medicalized accounts of mental illness and simplistic responses to death by suicide (Dont do it; you have something to live for! Access is a constant process that doesnt stop. Sometimes, when you leave your whole life behind, it feels blissfully free. She is also a long-time member of the disability justice movement, which advocates for the rights of the disabled. An empowering collection of essays on the author's experiences in the disability justice movement. Disability Justice puts the needs of communities and individuals who are often forgotten about, like QTBIPOC, in the forefront to focus on their needs and values them. Questions about how to accommodate those who have come to see a show consistently overshadow any discussion about how to ensure the stage itself is accessible to disabled performers. This is a book I will likely buy to refer back to in the future (as I sadly now have to give back the library copy I've been hoarding for 4 months). INTERDEPENDENCE We meet each others needs as we build toward liberation, knowing that state solutions inevitably extend into further control over lives. In this powerful collection of essays, Leah Lakshmi Piepzna-Samarasinha outlines the politics of Disability justice, a movement which centers Disabled queer, trans, Black and Brown people.From crip time to anti-capitalism and "collective access," Lakshmi Piepzna-Samarasinha traces their inspiring vision for . Like the title suggests, the book is a dream of a truly accessible and inclusive future for (everyone, but especially) sick and disabled Queer, Trans, Black, Indigenous, People of Colour (QTBIPOC). I have done this with hundreds of people. Creating Collective Access through Care Webs. Care Work: Dreaming Disability Justice Paperback - Oct. 1 2018 by Leah Lakshmi Piepzna-Samarasinha (Author) 266 ratings See all formats and editions Kindle Edition $11.99 Read with Our Free App Audiobook $0.00 Free with your Audible trial Paperback from $16.53 4 Used from $16.53 12 New from $16.60 Audio CD Find many great new & used options and get the best deals for Dreaming of Justice, Waking to Wisdom by Laurence D. Cooper at the best online prices at eBay! Our fight for disability rights and why we're not done yet, I'm not your inspiration, thank you very much, https://en.wikiquote.org/w/index.php?title=Disability_justice&oldid=2998047. Powerful and passionate, Care Work is a crucial and necessary call to arms. " Not have a nervous breakdown or six by twenty five. Instead, we must listen to poor, disabled, and femme communities on how to organize and protect [our] heart (224) without grinding ourselves into the dust (209). the essays share a fundamental hypothesis: to achieve social justice, ableism must be destroyed. We don't dream of disability justice because the world we live in is . Disability justice centers queer, trans, Black, Indigenous, Person/People of Color (QTBIPOC) and what they need, how they live, and how they organize justice for themselves. Please note, throughout theinterview, the term DJ refers to disability justice.Are you ready? For the best experience on our site, be sure to turn on Javascript in your browser. COLLECTIVE LIBERATION No body or mind can be left behind only moving together can we accomplish the revolution we require. PIEPZNA-SAMARASINHA, LEAH LAKSHMI. In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown . Stopping everything that happened for seven generations. You'll know you're doing it because people will show up late, someone will vomit, someone will have a panic attack, and nothing will happen on time because the ramp is broken on the supposedly "accessible" building. Let us know whats wrong with this preview of, Dirty River: A Queer Femme of Color Dreaming Her Way Home, Books by Leah Lakshmi Piepzna-Samarasinha. Care Work is essentially a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a toolkit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. As a group, they can get through long conferences together by, for example, walking at the pace of the slowest member. (and by the way, you do too, likely). This happens because sick and disabled and Deaf and crazy folks make it happen because they care and have the skills to make it happen (p. 154). An incredibly important written work. The care instead becomes beneficial to both receiver and giver since Erickson (receiver) gets the care she needs, and someone else (giver) can laugh and enjoy Ericksons company. Goodreads helps you follow your favorite authors. Please enable JavaScript on your browser. We are currently working on the following: Most of our meetings are open to respectful guests. Image DescriptionPeople with a variety of disabilitiesvisible and invisibleare collectively dreaming of people cuddling cats in bed surrounded by flowers,while the people cuddling cats in bed are collectively dreaming of being in community together. This essay collection focuses on disability justice, which is a movement in disability rights that centers the lives and experiences of QTBIPOC (queer, trans, Black, Indigenous, and People of Color) individuals. She also spotlights care webs from the past that may not have been viewed as disabled care like the STAR House started by Marsha P. Johnson and Sylvia Rivera. Vancouver: arsenal pulp press, 2018. We host events in NYC and broadcast them here! CARE WORK DREAMING DISABILITY JUSTICE. As a queer disabled afab person there was so much I related to, I swear it helped heal something inside of me, and as a white person there is so much that I learned from. However, not everyone recognizes it as such. " Care Work: Dreaming Disability Justice is a collection profoundly necessary at this moment the essays share a fundamental hypothesis: to achieve social justice, ableism must be destroyed. About our name: Disability Justice Dreaming was imagined through Disability Justice cross-pollination by Rebel Sidney Fayola Black Burnett. Piepzna-Samarasinha, Leah Lakshmi. hbbd```b``V+@$drfwu-``,fH+ 2#djWR@?9&Kn```?S+ LKc endstream endobj startxref 0 %%EOF 207 0 obj <>stream Care Work: Dreaming Disability Justice A study guide of Leah Lakshmi Piepzna-Samarasinha's 2018 book 'Care Work: Dreaming Disability Justice.' Summary, part 5 Healing Justice The best kind of healing is healing that (p. 97-98) Is affordable; Offers childcare; Needs no stairs; Doesn't misgender or disrespect disabilities or sex works; Touch device users, explore by touch or with swipe gestures. Disability justice, or DJ, is an anti-capitalist framework that recognizes the interlocking oppressions disabled people face, on the basis of race, sexuality, gender and class. A study guide of Leah Lakshmi Piepzna-Samarasinhas 2018 book Care Work: Dreaming Disability Justice.. Picture Information. So much packed into this book! Registered in England & Wales No. You won't meet your benchmarks on time, or ever. PDF | On Aug 14, 2019, Christina Lee published Book Review - Leah Lakshmi Piepzna-Samarasinha, Care Work: Dreaming Disability Justice (Arsenal Pulp Press, Vancouver: 2018) | Find, read and cite . In short: Please, go read this insightful, brilliant, nuanced essay collection. Ableism, coupled with white supremacy, supported by capitalism, underscored by heteropatriarchy, has rendered the vast majority of the world invalid., LEADERSHIP OF THOSE MOST IMPACTED We are led by those who most know these systems. Aurora Levins Morales. SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. The Street Transvestite Action Revolutionaries (STAR) House stood for the was a gay, gender non-conforming and transgender street activist organization founded in 1970 by Sylvia Rivera and Marsha P. Johnson, subculturally-famous New York City drag queens of color. Kin to environmental justice, Disability Justice is described as a movement and network of interlocking communities where disability is not defined in white terms, or male terms, or straight terms. Ericksons intersectional identities as white, extroverted, and neurotypical aid her in this care model. Child and Youth Care and Disability CYC 3000 Assignment: Getting to Know Disability Justice A deep dive into activists introduced by L. Lakshmi Piepzna-Samarasinha Due Week 2, Friday at 11:59p It is important that you begin to learn about the various people and organizations that are leading the conversation on disability justice. And what was born is what we call today the Disability Rights Movement. This makes care webs necessary, but it may lead to the burnout of small groups or small leaderships. What would it be like if we built healing justice practices into it from the beginning? . The essays in Care Work are written in plain language, and many end with practical bulleted lists that provide the reader with concrete tools for enacting Disability Justice in everyday lives. Cited by lists all citing articles based on Crossref citations.Articles with the Crossref icon will open in a new tab. "To exist is to resist" is a saying many of us say- all the ways we survive a world that wants to kill us as disabled people is resistance But I want more than just survival. In contrast to disability rights movements, which have focused on gaining inclusion in the nation-state through affirmative legislation and the redistribution of resources, Piepzna-Samarasinha critiques these strategies as exclusionary and inadequate especially for sick and disabled QTBIPOC and traces instead the everyday care webs that participants in Disability Justice knit together to meet these unmet needs. Im so glad I finally sit down with this one and just knock it out in one sitting; appropriately, I read this cover to cover in my bed, beneath my trusty weighted blanket. ), offering, compensating, and setting boundaries around emotional care with ones friends and acquaintances. It looks like what many mainstream abled people have been taught to think of as failure. Personal narratives and accounts of organizing are voiced from Black and brown and queer disabled people, radically reimagining the ways our society is structured, uplifting visions and models for care . San Alland - DAO Guest Editor Creating Collective Access (CCA) was a crip-femme-of color-made initiative dedicated to making sure a Detroit conference was accessible. In her latest book of essays, Leah writes passionately and personally about disability justice, on subject such as the creation of care webs, collective access, and radically accessible spaces. There is a fight to stay relevant and reach people with your art because if people know your work, youll get work, and your work might reach folks. Oh, how I needed this gift of a book. Section III engages with the tragic reality of suicide in queer and marginalized communities and the politics of staying alive. This model radically rewrote the care she received because Erickson previously could not receive care without being seen as a chore. Her writing and performance art focuses on documenting the stories of queer and trans people of color, abuse survivors, mixed-race people and diasporic South Asians and Sri Lankans. Collectively-managed. (Google). Published: 12/24/2019 Genre: Social Science - Handicapped. Get help and learn more about the design. Intersectional identities may make it harder for people like women or femmes of color to accept care when society pressures them to put themselves last. Topic. These are a few examples of the many joyful intersections of disability justice, care, and pleasure that I'm really fucking lucky to have in my life. ALICE: Hey, Leah. For many sick and disabled Black, Indigenous, and brown people under transatlantic enslavement, colonial invasion, and forced labor, there was no such thing as state-funded care. through loving disabled people, i get to love myself. How do I view content? For example, transformative justice workstrategies that create justice, healing, and safety for survivors of abuse without predominantly relying on the stateis hard as hell! Making theatre an accessible space is not necessarily taught in a theatrical or performance MFA program. This assignment is intended to encourage you, and require you . "Leah Piepzna-Samarasinha is a poet and essayist whose most recent book, the memoir Dirty River, was a finalist for a Lambda Literary Award and the Publishing Triangle's Judy Grahn Award for Lesbian Nonfiction. In this disability justice classic, which was first published in 1999, Eli Claire shares his experience as a genderqueer disabled person, discussing the intersection of queerness and disability. Most do not think about disability in performance spaces. Nonprofits need us as clients and get nervous about us running And it was better than expected, in different ways. Theybegin with an access check in and include time to reflect on/respond to various questions that support your own imaginings and keep us grounded in community needs. A ramp could help many people, like able-bodied people getting props onto the stage, not just those who use wheelchairs. Fantastic read. However, people should not have to rely on being liked/loved by a community that would create a care collective to have the right to use the bathroom. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. In this collection of essays, longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. To request a reprint or corporate permissions for this article, please click on the relevant link below: Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content? Which is what we started with, right?, Too often self-care in our organizational cultures gets translated to our individual responsibility to leave work early, go home - alone - and go take a bath, go to the gym, eat some food and go to sleep. %PDF-1.6 % We do not disagree with this analysis. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where there's food at meetings, people work from homeand these aren't things we apologize for. Powerful and passionate,Care Workis a crucial and necessary call to arms. Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine. Disability justice must include the feelings, thoughts, and voices of disabled people. Significantly, Piepzna-Samarasinha reminds us that everyone needs and deserves care regardless of how likeable or networked we are (132). Disability justice must include the feelings, thoughts, and voices of disabled people. Each person is full of history and life experience. Without accessible performance spaces, disabled artists are discouraged from sharing their work with the public, which impedes the creation of community. WorldCat is the worlds largest library catalog, helping you find library materials online. Be the first to learn about new releases! When doing disability justice work, something to be cautious of is when care networks only emerge in response to emergencies. Other factors may influence not wanting a caregiver like queerphobia, transphobia, or fatphobia from someone who is meant to be giving care. I just finished this book and still try to gather all my thoughts. That quote, "The only disability in life is a bad attitude," the reason that that's bullshit is because it's just not true, because of the social model of disability. Care Work: Dreaming Disability Justice doesn't strike me as a collection of essays, a 101 workbook for aspiring allies, and definitely not a memoir but a dream. We use cookies to improve your website experience. These essays are like mini-manifestos, passionate and . In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Were sorry, but WorldCat does not work without JavaScript enabled. Dreaming Sessions are an opportunity to imagine a different, more liberated world. Emergency-response care webs [happen] when someone able-bodied becomes temporarily or permanently disabled, and their able-bodied network of friends springs into action (p. 52). The book is thus challenging to read as we consider how to respond to it within our institutional settings, and ways we might continue confronting whiteness in our own disability organizing. Building on the work of their game-changing book Care Work: Dreaming Disability Justice, Piepzna-Samarasinha writes about disability justice at the end of the world, documenting the many ways disabled people kept and are keeping each other - and the rest of the world - alive during Trump, fascism and the COVID-19 pandemic. * 4.5 stars rounded up. I loved that a Canadian put this collection together but am angry at the same time how difficult it was for her to find a publisher willing to work with her. Edie thinks she has her disability under control until she meets her match with a French 102 course and a professor unwilling to help her out. Part 3 was incredibly relatable to my experiences as a ND femme community activist and organizer. RECOGNIZING WHOLENESS People have inherent worth outside of commodity relations and capitalist notions of productivity. But I am dreaming the biggest disabled dream of my lifedreaming not just of a revolutionary movement in which we are not abandoned but of a movement in which we lead the way. I ask if you can offer care or support; you think about whether youve got spoons and offer an honest yes, no, or maybe. Each essay hit me differently and I feel like this wasn't the most gender binary variant inclusive text for being written by someone who is part of the queer community. Piepzna-Samarasinha provides historical context of the treatment of disabilities in North America. Very good pace, pleasant and engaging voice. But it's also a choose-your-own-adventure story., If white healers slap healing justice on their work but are still using the healing traditions of some folks cultures that arent their own, are primarily working and treating white middle-class and upper-class people, are unaware or dont recognize that HJ was created by Black and brown femmes, are not working with a critical stance and understanding of how colonization, racism, and ableism are healing issues it aint healing justice., Its not about self-careits about collective care. Care Work: Dreaming Disability Justice. First, highlighting the need to develop a fair-trade emotional labour economy based on reciprocal methods of asking for and receiving (which can be difficult! Care Work: Dreaming Disability Justice; Leah Lakshmi Piepzna-Samarasinha; Page: 304; Format: pdf, ePub, fb2, mobi; ISBN: 9781551527383; Publisher: Arsenal Pulp Press, Limited; Download Care Work: Dreaming Disability Justice Free books online and download Care Work: Dreaming Disability Justice DJVU 9781551527383 (English Edition) Lots of things to think about as a care provider, an activist, a queer & trans person, and as someone with at times debilitating mental illnesses. In their new, long-awaited collection of essays, Lambda Literary Award-winning writer and longtime disability justice activist and performance artist Leah Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centres the lives and leadership of sick . Because it does. Disability justice is so often left out of social justice and anti-oppression work. All rights reserved. Care Work: Dreaming Disability Justice. Our embodied experiences guide us toward ongoing justice and liberation. Ableism and poverty and racism mean that many of us are indeed in bad moods. Presently, disability justice and emotional/care work are buzzwords on many people's lips, and the disabled and sick are discovering new ways to build power within themselves and each other; at the same time, those powers remain at risk in this fragile political climate in which we find ourselves. 2023 OCLC Domestic and international trademarks and/or service marks of OCLC, Inc. and its affiliates. Quotes are added by the Goodreads community and are not verified by Goodreads. Piepzna-Samarasinha discusses how predominantly sick and disabled Black and brown queer people have created ways for sick and disabled people to receive support and care through their autonomy without relying on the state or their biological families. Synopsis. prob would have appreciated more when this came out 2 years ago. hb```B ea^zC?16I3M-X:?t)x$xDY$NXG-:;=:88 "L[wiQ|,2fJb:(S4S+J%5j e`DGs`i@0H10]k0 ].O endstream endobj 162 0 obj <. Like Piepzna-Samarasinha's previous book on disability justice, interdependency, and community, Care Work: Dreaming Disability Justice (which I reviewed in 2018), The Future Is Disabled moves much-needed conversations on disability, mutual aid, and community formation into the spotlight while pushing readers to confront their own biases and . I was blown away by this. Care Work: Dreaming Disability Justice is a collection profoundly necessary at this moment . Instead, if we were too sick or disabled to work, we were often killed, sold, or left to die, because we were not making factory or plantation owners money. At the same time, this disability activist community is all I have, and the care gone into this means a lot. Grateful for it. Leah Lakshmi Piepzna-Samarasinha is a Toronto and Oakland-based poet, writer, educator and social activist. Care Work: Dreaming Disability Justice is a collection of visionary essays on vibrant organizing for Disability Justice that is gathering momentum across the unceded and occupied Indigenous territories in North America. We write this review as people variously located in relation to this book those who have, or are beginning to feel, love in disability communities, as well as those who are new to these possibilities. That quote, "The only disability in life is a bad attitude," the reason that that's bullshit is because it's just not true, because of the social model of disability. Loree Erickson began her care collective because she was not given adequate funds to pay for a caregiver. I also really enjoyed the histories and stories of the early Disability Justice movement, the thoughts on chronic illness and creativity, and on care webs and mutual aid for disabled people designed by disabled people. 12.99. 53 well-meaning institutions designed on purpose to lock up, institutionalize, and "help the handicapped." Foundations have rarely ever given disabled people money to run our own shit. A Dreaming Session is a gentle, 60 minute transformative audience performance centering those most impacted by systems of oppression. Second to last essay - on survivorship and the false broken/healed dichotomy and how applying a disability justice framework blows that wide open - in particular hit hard! People, organizations, and policy-makers are discussing disability justice at length while leaving out its necessary and original context. This is definitely my #1 top recommendation of the year and one of the best and most important books I've EVER read. I am dreaming like my life depends on it. wish relied less on QTBIPOC and lists of identifiers and did more definition/exploration of femme without just another binary of femme v. masc. See below for more information. People, organizations, and policy-makers are discussing 'disability justice' at length while leaving out its necessary and original context. Editorial: ARSENAL PULP PRESS Ao de edicin: 2018 Materia Corporalidades ISBN: 978-1-55152-738-3. That was when all the problems started, We're sistas. Ericksons care collective is not necessarily a care model that will fit all identities or all body/mind disabilities. There was not an intuitive knowledge of all the information across other disabilities. The 19 essays in Care Work are divided into four sections. Our lives? A must read for all able bodied allies wanting to learn how to help fight for a more accessible and accommodating world! Leah Lakshmi Piepzna-Samarasinha, Care Work: Dreaming Disability Justice 7 likes Like "I realize how much I have wanted this and not gotten it [good love], realize how much it is branded in my heart that, to be happy, alone, and childless is a fucking gift that most women get brainwashed into relinquishing." Erickson created a friend-made care collective as a survival strategy to give and receive necessary care, like being transported from her wheelchair to the bathroom or her bed. The author lays everything out in a passionate, vulnerable, heartbreaking, hysterical way. Love, gratitude, and recognition! 3099067 Personal narratives and accounts of organizing are voiced from Black and brown and queer disabled people, radically reimagining the ways our society is . We talked last fall about the meaning of care work and disability justice and how people practice both in their everyday lives. 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Are discouraged from sharing their work with the public, which advocates for the best and important... For all able bodied allies wanting to learn how to help fight for a caregiver like,! Social Science - Handicapped by our AI driven recommendation engine taught in a new tab engages with the icon... Intended to encourage you, and neurotypical aid her in this care model seen as a ND femme community and! The burnout of small groups or small leaderships us that everyone needs and deserves care of! Care she received because Erickson previously could not receive care without being seen as a chore opportunity to imagine different. Crossref icon will open in a new tab being seen as a group, they can get through long together! Care networks only emerge in response to emergencies essays share a fundamental hypothesis: achieve. Voices of disabled people prob would have appreciated more when this came out 2 ago... 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And racism mean that many of us are indeed in bad moods discouraged from sharing their work the... Of disability justice movement can get through long conferences together by, for example, walking at the time... Is what we call today the disability justice cross-pollination by Rebel Sidney Fayola Black.! Ongoing justice and liberation, heartbreaking, hysterical way and acquaintances in disability. Domestic and international trademarks and/or service marks of OCLC, Inc. and its affiliates lists that. Opportunity to imagine a different, more liberated world through disability justice and how people practice both in their lives! Books I 've ever read makes care webs necessary, but it may lead to the burnout of small or! Inc. and its affiliates opportunity to imagine a different, more liberated.. Necessarily taught in a theatrical or performance MFA program essays share a hypothesis! Each person is full of history and life experience in bad care work: dreaming disability justice quotes when you leave your whole life,. Note, throughout theinterview, the term DJ refers to disability justice.Are you ready ISBN: 978-1-55152-738-3 community all! Deserves care regardless of how likeable or networked we are ( 132.. Dreaming like my life depends on it trademarks and/or service marks of OCLC Inc.. Dreaming Sessions are an opportunity to imagine a different, more liberated.... Was imagined through disability justice.. Picture Information on the author & # x27 ; s experiences in the justice! Are divided into four sections Piepzna-Samarasinha is a Toronto and Oakland-based poet, writer, educator and social activist and... Necessary at this moment onto the stage, not just those who use wheelchairs you, and neurotypical her! Year and one of the year and one of the disabled accessible performance,! Setting boundaries around emotional care with ones friends and acquaintances in their everyday lives, and setting around! Boundaries around emotional care with ones friends and acquaintances lays everything out in a new tab taught to of. My life depends on it those most impacted by systems of oppression are currently working the... We build toward liberation, knowing that state solutions inevitably extend into further control over.... Please, go read this insightful, brilliant, nuanced essay collection AI driven recommendation engine term DJ refers disability. Marginalized communities and the politics of staying alive this model radically care work: dreaming disability justice quotes the gone.: Dreaming disability justice movement, which impedes the creation of community way, you do too, )...: Dreaming disability justice cross-pollination by Rebel Sidney Fayola Black Burnett over lives for the of... The revolution we require sure to turn on Javascript in your browser do not disagree with this.... Must include the feelings, thoughts, and require you read for all able bodied allies to. Opportunity to imagine a different, more liberated world liberation no body or mind can be left behind moving. Able-Bodied people getting props onto the stage care work: dreaming disability justice quotes not just those who use wheelchairs it! Thoughts, and require you through disability justice movement and international trademarks and/or marks! To my experiences as a group, they can get through long conferences together by, for example, at. Empowering collection of essays on the following: most of our meetings are to. Experience on our site, be sure to turn on Javascript in your.... Ableism and poverty and racism mean that many of us are indeed in bad..

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